UOAA Leadership Update
October 23, 2010 at 7:16 pm | Posted in organizational business | 2 CommentsDear friends,
Last year at this time I was elected to the Office of UOAA President-Elect, a position that would have found me assuming the Office of President on January 1st, 2012. However in early October UOAA’s Managing Board of Directors received a message from Kristin Knipp advising us that for personal reasons she found it necessary to resign as UOAA’s President.
Kristin had served as our President for only a short time, but had been active in our organization for a number of years. During her term she made substantial contributions to our public image by bringing us into the electronic social networking world of today. She was responsible for communicating our Mission Statement, overseeing the development of our modernized logo, initiating this blog, coordinating the re-design of our website and instituting Ostomy Awareness Day. While we did not request her resignation, we certainly respect her decision and agree that her family must come first. We wish her well in all her future endeavors.
So here we are having our first official dialog. I live in Vernon Hills, Illinois, am married to Barbara and together we have 5 sons. I have had an ileostomy for 38 years and have been an active leader in both UOA for 15 years and in UOAA since its formation in 2005. I believe in the mission of the UOAA, and am excited to have the opportunity to further the outreach programs we have in place and to complete those currently under development.
It has become clear to me over the last few years that we in the ostomy community are being made to feel inadequate or embarrassed by how the media portrays us on TV, or discusses, and yes, even jokes about our conditions on radio or in print. Let me assure you all right now, that I am committed to bringing the REAL facts of how ostomates LIVE, to the rest of the world. In a world, where years ago subjects like breast cancer or autism could not be discussed, we have evolved into a world where these issues are now dinner conversation. We too, because of the fact that ostomy surgery save lives, MUST bring our positive message to the public. We should be proud of who we are and need to let others in our same situation know that by becoming involved with us, together WE can reach out to those who would rather have cancer or an inflammatory bowel disease than face ostomy surgery.
I know I can count on you to join me and all of our other tremendously talented UOAA volunteers in our journey to educate, inform and change the world’s perception of WHO we are. We are your neighbors, your clergy, your co-workers and your friends.
I look forward to continuous input from all of you, as my door, phone and e-mail are always open to comments. I encourage your participation and involvement along with your passion, and know that we can break the stigma that the term “ostomy” still carries.
Sincerely,
Dave Rudzin
800.826.0826
How long till the UOAA Conference in Reno?
October 3, 2010 at 7:13 pm | Posted in organizational business | Leave a commentYou can see details about the coming 2011 UOAA National Conference (and other events) at the page http://www.ostomy.org/conferences_events.shtml .
It’s getting closer every minute! How much closer? How many days till August 7, 2011 (the first day of the Conference)? There’s a countdown on that page, to tell you how long you have to save your pennies and make your plane reservation.
Hope to see YOU there!
DNA Test May Speed Colon Cancer Diagnosis
August 10, 2010 at 1:38 pm | Posted in ostomy | Leave a commentBy NICHOLAS WADE of the New York Times, Aug 10, 2010
A new generation of DNA tests for colon cancer seems likely to improve the detection both of cancers and of the precancerous polyps that precede them. The tests, if validated, could reduce the burden of disease substantially by detecting tumors at an early stage, including those not picked up by a colonoscopy.
Please continue reading this interesting copyrighted article at the following link:
http://www.nytimes.com/2010/08/10/health/10cancer.html?ref=nicholas_wade
New rules make it easier for public to appeal denials of health insurance claims
August 1, 2010 at 9:58 am | Posted in advocacy | Leave a commentBy Phil Galewitz and Michelle Andrews
Kaiser Health News
Thursday, July 22, 2010; A17
Patients will find it easier to appeal the denials of health insurance claims under rules being issued Thursday by the Obama administration, which is trying to boost political support for the new health-care law by highlighting advantages for consumers.
The regulations guarantee consumers the right to appeal denials — directly to their insurers and then, if necessary, to external review boards.
The external-review requirement will apply, for the first time, to companies that are self-insured — ones that pay their employees’ claims directly rather than buying insurance to cover their workers.
“This is huge,” said Sara Rosenbaum, head of the department of health policy at the George Washington University School of Public Health and Health Services.
Most states already guarantee consumers the right to external appeals, though their rules vary widely. Only Alabama, Mississippi, Nebraska, and North and South Dakota do not have external review laws.
“The rules issued today will end the patchwork of protections that apply to only some plans in some states, and simplify the system for consumers,” according to a White House fact sheet.
However, the rules don’t apply to “grandfathered” plans — those that existed on March 23, when the health law was enacted. Plans can lose their “grandfathered” status if they make significant changes to their plans regarding costs or benefits.
Still, by next year, an estimated 31 million people in employer-sponsored plans and 10 million more in individual plans will benefit from the new appeals rights, according to the White House.
Advocates hope the changes will give consumers a fairer shot at fighting back when their claims are denied. Insurers deny claims for many reasons: They may determine that a treatment is not medically necessary, for example, or that it’s experimental. Sometimes denials relate to coverage of pre-existing health conditions.
America’s Health Insurance Plans, the main health insurance lobby, supports efforts to create uniformity in the appeals process, said spokesman Robert Zirkelbach, who has not yet seen the final rules. “We have encouraged every state to have a third-party review system,” he said.
But appealing insurers’ denials is easier in some states than others. Many consumers don’t know that they can appeal. “Not enough consumers know this is an option that they have,” said Angel Robinson, a consumer advocate in the Iowa Insurance Division.
To change that, the administration is providing $30 million in grants to states to strengthen consumer assistance offices.
Administration officials said they hope states that do not have an external review system will set up one using the new rules. If they don’t, a federal review system will be set up for them.
Under the regulations, states are “encouraged” to adopt the new standards by July 2011.
The new regulations take effect for plan years starting Sept. 23. But they won’t automatically apply to residents in states that have existing external review laws until next July. That’s to give states time to adjust to the new standards.
If states fail to change their rules by next July, their residents will then be able to rely on the federal standards. But federal officials are still working out the details of how that would be done.
The system can be hard for patients to navigate.
When Craig Washington suffered a stroke in June 2009, his health plan denied more than $28,000 in claims for the two weeks he was hospitalized in Chicago. The insurer said his stroke was due to a preexisting condition, and because he had been uninsured before starting a job that April as executive director of Roseland Community Hospital Foundation, the plan denied his claims. Washington lost two appeals with his health plan.
Now he’s appealing to an independent state review panel. “It’s exhausting,” he says.
Galewitz and Andrews are reporters for KHN (http://www.kaiserhealthnews.org), an editorially independent news service and a program of the Kaiser Family Foundation, a nonpartisan health-care policy organization that is not affiliated with Kaiser Permanente.
Get to Know Our New President, Kristin Knipp
January 27, 2010 at 5:47 pm | Posted in organizational business | Leave a commentTags: colostomy, ileostomy, ostomy, UOAA, urostomy
Kristin Knipp of Ohio became UOAA President as of January 1, 2010. She will be preparing messages for the Phoenix magazine, of course, and in addition was invited to prepare a Guest Editorial in the January issue of O/WM – an Ostomy/Wound journal. Please read her article at this link: http://www.o-wm.com/content/forging-clinician-patient-uoaa-partnership .
Kristin led the UOAA Management Board of Directors at a successful and energizing strategic planning session last week, so please be on the look-out for advances and new elements within UOAA – and be prepared to continue to help UOAA achieve its goals.
2009 New Orleans National Conference
August 24, 2009 at 3:06 pm | Posted in organizational business | Leave a commentTags: ostomy
UOAA Conference 2009, NOLA from UOAA on Vimeo.
Come and Meet “CoCo”
June 16, 2009 at 12:16 pm | Posted in ostomy | Leave a commentTags: http://www.uoaa.org/images/events/colossalcolon2009.jpg
If you haven’t met her, come to New Orleans this August and really get to know her! She is CoCo, the Colossal Colon. Thanks to an educational grant to UOAA by edgepark arrangements have been made with the exhibit’s owner, The Colon Club, for CoCo to appear at our Conference. She is 40 feet long, 4 feet high and when crawling through her, or looking through one of the many viewing ports you will be able to learn about IBD, polyps, diverticula, hemorrhoids and other intestinal nasties. CoCo travels the country promoting awareness about diseases of the colon and encourages viewers to get regular check ups including periodic colonoscopy exams. She will be open to both UOAA Conference attendees as well as the general public on Thursday August 6th from noon to 5:00 pm; on Friday, the 7th from 9:00 am to 5:00 pm August and on Saturday, the 8th, from 9:00 am to 3:00 pm in the Sheraton Hotel’s ground floor Gallery Room.

Medicare’s ostomy supply payments increase 5 percent
January 22, 2009 at 10:38 am | Posted in ostomy | Leave a commentAs of 1-1-09, the amount that Medicare will pay for ostomy supply items increased by 5% (as it did for most items in the category called “Durable Medical Equipment-Prosthetics, Orthotics and Supplies”). If you obtain your products from a supplier that accepts Medicare assignment, you will not notice much difference, but the supplier will receive more when Medicare pays the claim (and it will show up on the Explanation of Benefits form you receive).
If you pay for your supplies at the time of purchase and are reimbursed by Medicare, you will see this increase in your check. BUT the increase provides an opportunity for you to ask if your supplier will now accept assignment on your order, since the amount suppliers will be reimbursed is a little better than it was. When your supplier accepts assignment, they are required to pay for the shipping – that alone is a good savings for you. And you will not have to make that upfront payment for the full retail price and wait for Medicare to pay you back. So have a chat with your supplier!
FDA warns about BOWEL PREP products
December 22, 2008 at 4:35 pm | Posted in ostomy | Leave a commentBecause of additional reports of serious kidney damage, the Food and Drug Administration (FDA) issued an alert on November 11, 2008 requiring that Black Box warnings be added to the labels for oral sodium phosphate prescription tablets Visicol® and OsmoPrep®. On December 11, 2008 the C.B. Fleet Company voluntarily recalled all their over-the-counter oral sodium phosphate products including Fleet Phospho-soda® and Fleet EZ-Prep™ Bowel Cleansing System.
When used for bowel cleansing before colonoscopy, the products can very rarely cause acute phosphate nephropathy, resulting in permanent kidney damage.
See the FDA information, and access the page where you can file your own adverse event concerning any FDA-approved product, at http://www.fda.gov/cder/drug/infopage/OSP_solution/default.htm .
See more information from the Colorectal Cancer Coalition (C3) at this link.
So if your New Year’s Resolution includes having a colonoscopy or other colon text, please get a new recommendation from your physician for the bowel prep that will be needed.
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