Social Security “Compassional Allowances” – faster financial help for very ill Americans

October 28, 2008 at 3:34 pm | In Uncategorized | Leave a Comment

Social Security Announces Nationwide Launch of Compassionate Allowances
Process Will Fast Track Applications For
People with Cancers and Rare Diseases

Oct. 27, 2008  — Michael J. Astrue, Commissioner of Social Security, today announced the national rollout of the agency’s Compassionate Allowances initiative, a way to expedite the processing of disability claims for applicants whose medical conditions are so severe that their conditions obviously meet Social Security’s standards.

“Getting benefits quickly to people with the most severe medical conditions is both the right and the compassionate thing to do,” Commissioner Astrue said. “This initiative will allow us to make decisions on these cases in a matter of days, rather than months or years.”

Social Security is launching this expedited decision process with a total of 50 conditions. Over time, more diseases and conditions will be added. A list of the first 50 impairments — 25 rare diseases and 25 cancers — can be found at www.socialsecurity.gov/compassionateallowances.

Before announcing this initiative, Social Security held public hearings to receive information from experts on rare diseases and cancers. The agency also enlisted the assistance of the National Institutes of Health.

Compassionate Allowances is the second piece of the agency’s two-track, fast-track system for certain disability claims. When combined with the agency’s Quick Disability Determination process, and once fully implemented, this two-track system could result in six to nine percent of disability claims, the cases for as much as a quarter million people, being decided in an average of six to eight days.

“This is an outstanding achievement for the Social Security Administration,” said Peter Saltonstall, President of the National Organization for Rare Disorders. “It has taken Social Security less than a year to develop this much-needed program that will benefit those whose claims merit expedited consideration based on the nature of their disease. Disability backlogs cause a hardship for patients and their families. Commissioner Astrue and his staff deserve our thanks for a job well done.”

“Unfortunately, many hardworking people with cancer may not only face intensive treatment to save their lives, but they may also find themselves truly unable to perform their daily work-related activities and as result, may face serious financial concerns, such as the loss of income and the cost of treatment,” said Daniel E. Smith, president of the American Cancer Society Cancer Action Network. “The Social Security Administration’s Compassionate Allowances program will help streamline the disability benefits application process so that benefits are quickly provided to those who need them most.”

“This is America, and it simply is not acceptable for people to wait years for a final decision on a disability claim,” Commissioner Astrue said. “I am committed to a process that is as fair and speedy as possible. The launch of Compassionate Allowances is another step to ensuring Americans with disabilities, especially those with certain cancers and rare diseases, get the benefits they need quickly.”
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1

Acute Leukemia

2

Adrenal Cancer - with distant metastases or inoperable, unresectable or recurrent

3

Alexander Disease (ALX) – Neonatal and Infantile

4

Amyotrophic Lateral Sclerosis (ALS)

5

Anaplastic Adrenal Cancer - with distant metastases or inoperable, unresectable or recurrent

6

Astrocytoma – Grade III and IV

7

Bladder Cancer - with distant metastases or inoperable or unresectable

8

Bone Cancer – with distant metastases or inoperable or unresectable

9

Breast Cancer – with distant metastases or inoperable or unresectable

10

Canavan Disease (CD)

11

Cerebro Oculo Facio Skeletal (COFS) Syndrome

12

Chronic Myelogenous Leukemia (CML) – Blast Phase

13

Creutzfeldt-Jakob Disease (CJD) – Adult

14

Ependymoblastoma (Child Brain Tumor)

15

Esophageal Cancer

16

Farber’s Disease (FD) – Infantile

17

Friedreichs Ataxia (FRDA)

18

Frontotemporal Dementia (FTD), Picks Disease -Type A – Adult

19

Gallbladder Cancer

20

Gaucher Disease (GD) – Type 2

21

Glioblastoma Multiforme (Brain Tumor)

22

Head and Neck Cancers – with distant metastasis or inoperable or uresectable

23

Infantile Neuroaxonal Dystrophy (INAD)

24

Inflammatory Breast Cancer (IBC)

25

Kidney Cancer – inoperable or unresectable

26

Krabbe Disease (KD) – Infantile

27

Large Intestine Cancer – with distant metastasis or inoperable, unresectable or recurrent

28

Lesch-Nyhan Syndrome (LNS)

29

Liver Cancer

30

Mantle Cell Lymphoma (MCL)

31

Metachromatic Leukodystrophy (MLD) – Late Infantile

32

Niemann-Pick Disease (NPD) – Type A

33

Non-Small Cell Lung Cancer – with metastases to or beyond the hilar nodes or inoperable, unresectable or recurrent

34

Ornithine Transcarbamylase (OTC) Deficiency

35

Osteogenesis Imperfecta (OI) – Type II

36

Ovarian Cancer – with distant metastases or inoperable or unresectable

37

Pancreatic Cancer

38

Peritoneal Mesothelioma

39

Pleural Mesothelioma

40

Pompe Disease – Infantile

41

Rett (RTT) Syndrome

42

Salivary Tumors

43

Sandhoff Disease

44

Small Cell Cancer (of the Large Intestine, Ovary, Prostate, or Uterus)

45

Small Cell Lung Cancer

46

Small Intestine Cancer – with distant metastases or inoperable, unresectable or recurrent

47

Spinal Muscular Atrophy (SMA) – Types 0 And 1

48

Stomach Cancer – with distant metastases or inoperable, unresectable or recurrent

49

Thyroid Cancer

50

Ureter Cancer - with distant metastases or inoperable, unresectable or recurrent

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